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Living with PSP & CBD

Information and support to help you live the best life possible with PSP & CBD.

Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) are challenging conditions affecting the daily lives of people diagnosed and their families. Despite the challenges PSP & CBD can bring, you can still live a fulfilled life full of activities, hobbies, friends and family.

To support you as you adapt to living with PSP or CBD, we’ve created a range of support services and resources.

This space brings together information about symptom management, coping strategies, and inspiring stories from others living experiences. Our focus is not only on managing the physical symptoms but also on improving the quality of life through emotional and psychological support.

You can also learn more about the conditions, watching our film or downloading our detailed resource.

SUPPORT FOR YOU

As you adapt to life living with PSP or CBD, there still maybe times you feel you need some support, aside from your friends and family.

Our Helpline can not only provide you with a listening ear, they can also help sign post you onto other support we can provide. Whether you want to connect with others via our Regional Support Groups, receive one-to-one support for a challenging time or find ways to enhance your wellbeing, we can help.

Keep reading for more details about our Support Groups, Link Volunteer Service, Support Grants and Online Exercise Sessions.

RESOURCES

In addition to the support services we provide, we have also produced a number of useful resources to help keep you up to date with news, connect you with others and inform you about the conditions.

Below you can learn more about our publications, quarterly magazine, podcast and experiences from other people living with PSP & CBD.

CONTACT US

If you would like to speak to someone about living with PSP or CBD and find out more about the support available to you, please get in touch using the details below.

Alternatively, take a look at our overview of support services below.

Telephone: 0300 0110 122

Email: helpline@pspassociation.org.uk

PSPA SUPPORT SERVICES

Helpline and Information Service

Learn how our Helpline can support you, your family and healthcare professionals involved in your care.

Find out more

Link Volunteer Service

One-to-one support support for individuals and families affected by PSP & CBD.

Find out more

Your PSPA Support Groups

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PSPA Support Grants

Grants of up to £250 to help improve your quality of life.

 

 

Find out more

Personal Experiences

Learn more about PSP & CBD by reading experiences of people living with the conditions.

Find out more