PSPA Matters is our quarterly magazine, which is circulated by post and by email.
The magazine is packed with care information, research news, volunteering updates, inspirational stories of people affected by PSP & CBD and our amazing fundraisers.
You can sign up to receive the magazine by completing our Join Us form or by emailing communications@pspassociation.org.uk
Catch up with all the latest news and information from the PSP & CBD community below and in our PSPA Matters archive.
PSPA MATTERS 2026
Edition 2
The second edition of PSPA Matters 2026 is now available! It features the latest news, inspiring stories, and useful information for the PSP & CBD community.
To begin with, we celebrate all those who participated in the London Marathon 2026 and the incredible efforts of #TeamPSPA! Inside, you can see updates from runners about their motivation behind their epic challenge and fundraising.
Next, we provide insights into how our local network of support groups helps people connect, share lived experiences, and ensure no one has to navigate their journey alone. We also cover the benefits of Botox injections and how they can be used as a practical management tool to help ease specific symptoms and improve daily comfort.
We understand that navigating the benefits system can be overwhelming. In this edition of PSPA Matters, our Helpline and Support Services Manager, Peggy Newton, breaks down practical steps and resources available to help you access the financial support you are entitled to.
Next, you get to learn more about the launch of our UK-wide community fundraising challenge, Pathway to Progress, and find out how you can help us map out a path toward vital support and research funding.
Finally, we catch up on the highlights from our first-ever regional awareness day in Lincolnshire, bringing families and healthcare professionals together to put PSP & CBD in sharper focus.
Download this edition now and stay connected with the PSPA community!
PSPA MATTERS 2026
Download and read or listen to articles from our 2026 editions.
PSPA MATTERS 2025
Download and read or listen to articles from our previous 2025 editions.
