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PSPA Support Grants

Grants of up to £300 to help improve your quality of life.

 

 

PSP & CBD can bring challenges to everyday life. Despite these challenges, we understand it is important to maintain connections and quality of life.

PSPA Support Grants are available to both people living with PSP & CBD and family members to support you as you do just that,

The grants can provide a one-off payment of up to £300 each year, to help provide an item or service that can help maintain or improve your life.

Applications for grants will be assessed on the impact the item or service identified, would have for the person living with PSP or CBD, or their carer.

Please note, funding is limited, therefore we can only provide a grant to each individual once a year. You may apply for the funding each year, should you require additional support.

WHAT CAN A PSPA SUPPORT GRANT HELP TO FUND?

Our Support Grants can help to fund a wide variety of services, equipment or items to help improve your quality of life.

Examples of items the Support Grant can help to fund include:

  • A communication aid
  • Respite care
  • A mobility aid
  • Adapted crockery and cutlery
  • Taxi journeys to Support Groups
  • Equipment to support a hobby
  • Exercise classes
  • Holistic therapies
  • Counselling sessions.

HOW TO APPLY FOR A SUPPORT GRANT

Please ask a health or social care professional involved in your care to help complete the PSPA Support Grant application form. Incomplete application forms will result in the application being delayed whilst further information is requested.

PSPA support grants are provided to make a difference to those living with or affected by PSP & CBD and to help improve quality of life. Applicant must be a resident in the UK.

Funding is limited and applications will be assessed based on the impact that the item or service would have on the person living with PSP, CBD and/or their carer. We are only able to provide a grant to an individual once a year. Please note that the maximum amount for a support grant is currently £300, we consider value for money and the impact of the grant and may award any amount up to the maximum. Please contact PSPA helpline on 0300 0110 122 or helpline@pspassociation.org.uk if you have any questions.

EXCLUSIONS

PSPA will not provide a grant in the following instances:

  • Retrospective funding
  • Emergency healthcare needs
  • Funeral costs
  • Repayment of debt
  • Legal fees
  • Daily living costs (including utilities).

We aim to process applications within 5 working days. Once a decision has been made, the applicant and the referring HSCP will be informed.

We require the following information when applying for funding before we can consider your application:

  • Completed application form. Incomplete application forms will result in the application being delayed whilst further information is requested.
  • All applications require assessment by an appropriate HSCP, i.e. an assessment by an Occupational Therapist recommending the exact make and model for mobility equipment such as wheelchairs, walking aids and specialist seating or a Speech and Language Therapist for communication aids.
  • Quotation with the cost of the item.
  • Confirmation that funding is not available from statutory sources.

If you would like a hard copy of this form, please contact the Helpline at: helpline@pspassociation.org.uk

COMPLETE THE SUPPORT GRANT APPLICATION FORM

“We were awarded a grant of £250 to provide Jim with one to one personal training sessions once a week at the local leisure centre. On top of that, I get an hour to myself too, to go to the shops or whatever. Then when I pick Jim up, we have a coffee out before heading home again. So, the grant benefits us both.

I was pleased to hear we can apply for a grant each year, so I am hoping to apply again next year.” Christine.

READ CHRISTINE AND JIM'S EXPERIENCE

CONTACT US

For more information about our Support Grants, including how to apply and what items might be eligible the funding, please contact our Helpline.

Email: helpline@pspassociation.org.uk
Telephone: 0300 0110 122

PSPA SUPPORT GRANTS INFOGRAPHIC
A male carer supporting his wife as they leave a venue

Frequently Asked Questions

What is a PSPA Support Grant?

A PSPA Support Grant is a one-off payment of up to £300 towards improving the quality of life for people living with PSP or CBD, their carers and families. It can help fund equipment or services that make everyday life easier and more comfortable.

Who can apply for a PSPA Support Grant?

Support Grants are available to people living with Progressive Supranuclear Palsy and Corticobasal Degeneration, as well as their carers and family members. You must be referred by a health or social care professional involved in your care.

What can the Support Grants be used for?

Support Grants can be used for accessing or purchasing equipment or services that improve quality of life, including mobility aids, communication aids, respite care, counselling, exercise classes, adapted equipment, transport to support groups, or hobby items. Applications are assessed based on the impact the item or service will have on the person affected by PSP or CBD.

What costs are not covered by the Support Grant?

PSPA Support Grants cannot be used for retrospective costs, emergency healthcare needs, funeral costs, utility bills, debt repayment, legal fees, or general daily living costs.

How often can I apply for a Support Grant?

You are eligible to receive one Support Grant per year. If you need further support in the future, you can apply again the following year.

How do I apply for a PSPA Support Grant?

If the support grant is needed for a particular piece of equipment or service related to your condition, you will need a health or social care professional involved in your care to complete the application form. For wellbeing therapies and other support needs, you can contact the Helpline directly to apply for a support grant. 

The completed form can then be sent to PSPA by email to helpline@pspassociation.org.uk or by post to PSPA, 3rd Floor, Margaret Powell House, 415a Midsummer Boulevard, Milton Keynes, MK9 3BN. Your application will be processed within around five working days.

How are Support Grant applications assessed?

Applications are assessed based on how the requested equipment or service will improve the quality of life of the person living with PSP or CBD, or their carer. Funding is limited, so grants are awarded on an individual basis.

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PSPA Support Services

Learn how we can support you on the phone, in-person or through information.

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