Imogen’s story
“The lack of knowledge and understanding of PSP has inspired me to pursue a career in research.”
Personal Experiences
There are thousands of people around the UK living with PSP and CBD. You can read some of their personal experiences here.
If you would like to share your personal experience of PSP or CBD, please complete our Share your PSP or CBD experience form and email it back to communications@pspassociation.org.uk
Elizabeth’s story
“We took one day at a time.”
Bradley’s story
“Since it took so long to get to the bottom of dad’s illness, he was really keen on raising awareness of PSP.”
Dawn’s story
Dawn’s dad, Noel MacCoombe, was a really athletic and active man, having played rugby and boxed when he was younger.
Jim’s story
“I want to focus on living.”
Karen’s story
“We continued to live life to the full.”
Austin’s Story
Austin, 78, was something of a local hero in his native Belfast, having played rugby for Ulster and been a member of the Irish rugby squad.
Theresa’s story
Theresa, 57, spent many years volunteering with organisations including Oxfam, DIAL Kent, and her local volunteer bureau.
Mick’s Story
Mick, from Somerset, hasn’t let CBD stop him from enjoying a safari in South Africa.
Lynette’s story
Lynette, from Wokingham, explains how she copes with daily life with CBD
Chris’ story
Chris lives in Orpington, South London with his wife Margaret and was diagnosed with PSP in March 2015.
Susie’s Story
Mum’s immobility inspires physiotherapist daughter to take on 10k challenge