Save the Date for Neuro 2026! CommunicationsInformation & SupportResearch Save the Date for Neuro 2026! PSPA and CurePSP will be partnering again next November to bring the Neuro 2026 Symposium,…Colleen Wren25th September 2025
PSPA Announce New CEO BlogCommunicationsInformation & Support PSPA Announce New CEO We are delighted to announce that Dr James Cusack will become the new CEO of…Colleen Wren23rd September 2025
Listen to PSPA on the New Episode of the Movers and Shakers Podcast CommunicationsInformation & Support Listen to PSPA on the New Episode of the Movers and Shakers Podcast PSPA’s CEO Rebecca Packwood, and supporter Lisa Rodrigues who lives with CBD, were delighted to…Colleen Wren20th September 2025
Read the Brand New Edition of PSPA Matters BlogCommunicationsInformation & Support Read the Brand New Edition of PSPA Matters The brand new edition of PSPA Matters is now available to read! We have another…Colleen Wren12th September 2025
New podcast episode! The benefit of movement Communications New podcast episode! The benefit of movement Episode three of the PSPA Podcast 2025, has hit the airwaves! In this episode, we…PSPA Admin2nd September 2025
Amylyx Pharmaceuticals discontinue clinical trial for PSP CommunicationsResearch Amylyx Pharmaceuticals discontinue clinical trial for PSP This week, Amylyx Pharmaceuticals has made the decision to discontinue their Orion trial of AMX0035…PSPA Admin28th August 2025
Watch our Research Information Day 2 Recordings CommunicationsInformation & SupportResearch Watch our Research Information Day 2 Recordings We were delighted to hold our second Research Information Day of the year on Thursday…Colleen Wren28th August 2025
New Portsmouth Support Group Starting in August Blog New Portsmouth Support Group Starting in August We are excited that a brand new Support Group will be starting in Portsmouth on…Colleen Wren20th August 2025
New Masterclass: Falls and Mobility Management in PSP & CBD CommunicationsInformation & Support New Masterclass: Falls and Mobility Management in PSP & CBD Are you a healthcare professional seeking to enhance your expertise in managing falls and mobility…PSPA Admin7th August 2025
Make your Voice Heard in our Patient Survey CommunicationsInformation & SupportResearch Make your Voice Heard in our Patient Survey We have now launched our 2025 Patient Survey. Everything we do at PSPA is shaped…Colleen Wren28th July 2025
Programme Grants for Applied Research (PGfAR) are Launching Soon BlogInformation & SupportResearch Programme Grants for Applied Research (PGfAR) are Launching Soon The National Institute for Health and Care Research (NIHR) is opening its Programme Grants for…Colleen Wren15th July 2025
PSPA’s response to The Observer article Communications PSPA’s response to The Observer article We were shocked and disappointed to learn of the allegations made about Raynor and Moth…PSPA Admin7th July 2025
Help #FixCHC this PSP & CBD Awareness Week Communications Help #FixCHC this PSP & CBD Awareness Week Today marks the first day of PSP & CBD Awareness 2025! Continuing our commitment to…PSPA Admin23rd June 2025
Research helps to distinguish PSP from Parkinson’s CommunicationsResearch Research helps to distinguish PSP from Parkinson’s A recent study led by Dr Ed Jabbari and part funded by PSPA, has shown…PSPA Admin20th June 2025
PSPA Podcast, Episode 2: understanding support and care CommunicationsInformation & Support PSPA Podcast, Episode 2: understanding support and care Episode 2 of series 3 of the PSPA Podcast has hit the airwaves! In this…PSPA Admin16th June 2025
Take part in research from home CommunicationsResearch Take part in research from home Researchers at Durham University are looking into how people with Progressive Supranuclear Palsy (PSP) and…PSPA Admin13th June 2025
Register for our Research Information Session CommunicationsResearch Register for our Research Information Session We are pleased to be hosting our third Research Information Session of 2025 on Thursday,…PSPA Admin11th June 2025
2025 Impact Report: How you helped to make 30 years matter Communications 2025 Impact Report: How you helped to make 30 years matter We have published our 2024 Impact Report, highlighting achievements you helped us to reach during…PSPA Admin4th June 2025
Thank you to our volunteers CommunicationsVolunteering Thank you to our volunteers During National Volunteers' Week we want to extend a massive 'thank you' to all of…PSPA Admin2nd June 2025
Watch our Brand New It Could Be CBD Animation BlogInformation & Support Watch our Brand New It Could Be CBD Animation We know how important spotting the early signs of PSP & CBD are as this…Colleen Wren20th May 2025