PSPA has a range of support groups available to help connect you with people who are living through the same experiences as you.
Most groups meet on a monthly or bi-monthly basis, either in-person or online.
Meetings provide an informal opportunity for you to talk and discuss worries and experiences. Some may include a Q&A session with a healthcare professional or researcher.
Keep reading to learn more about the different networks that are here to support you.
NEWLY DIAGNOSED SUPPORT GROUP
We have a group for people who have been newly diagnosed with PSP & CBD within the last six months.
This support group meets on a monthly basis via Zoom and is supported by PSPA’s Helpline and a range of healthcare professionals, who will be on hand in the meeting to answer any questions you might have.
Learn more about the group meetings, a schedule of speakers and how to sign up to attend meetings below.
CBD SUPPORT GROUP
Using feedback from people who attend our support groups, we established our CBD Support Group in 2022.
The CBD Support Group, which meets monthly via Zoom, is specifically for people living with the condition. The meeting enables people to chat through challenges and changes and make friends with people living similar experiences.
The latest dates and timings for meetings can be found, below.
REGIONAL SUPPORT GROUPS
We have more than 30 support groups which meet on a regular basis across the UK.
Our Regional Support Groups are run by our marvellous volunteers, in-person and online, and provide opportunities for you and your family to get together with other families living with PSP & CBD in your area. Some groups also organise social events and outings.
Find a Regional Support Group near to you below.
IN ADDITION…
PSPA ONLINE FORUM
To help people living with PSP & CBD connect online, we have a well-used online forum established on HealthUnlocked.
This forum is a safe place for you to share your thoughts and feelings, details of your symptom progression, and signpost to information and tips.
FAMILY AND FRIENDS DAYS
Twice a year we host a family and friends day, one in the north of the country and one in the south.
These events allow you to meet other families affected by PSP & CBD in your area, as well as hear updates from healthcare professionals and researchers.
CONTACT US
If you would like to speak to someone about your diagnosis and the support available to you, please get in touch using the details below.
You can also learn more about the support available to you and your family in our infographic.
Telephone: 0300 0110 122
