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PSPA Newly Diagnosed Group

Our Local Groups offer amazing support to everyone affected by PSP & CBD however, the group meetings regularly host people at different stages of their disease progression and for some newly diagnosed people this can be quite daunting.

As a result, we have decided to trial Zoom meetings for people who have received a diagnosis of PSP or CBD within the last six months. We know from feedback how important it is for people to meet others who are experiencing the same feelings and emotions following diagnosis and talk through the support and information available to them.

The meetings for newly diagnosed people, will take place on the last Wednesday of each month with the first meeting taking place on 28 October at 11am

A healthcare professional will help support each meeting, speakers taking part include:

2020

Wednesday 28 October   Jade Donnelly – Specialist Physiotherapist & APS Coordinator

Wednesday 25 November  Dr Wendy Edwards – PSPA Research Manager

December – No meeting

2021

January 27   Dr Tim Rittman – Neurologist – Addenbrookes Hospital

February 24  Julie Cummins – Occupational Therapist

March 31  Chloe Cripps – Speech and Language Therapist

April 28  Salford Royal Team – Dr Chris Kobylecki – Neurologist, Patsy Cotton – PDNS and Tim Jackson – Advanced Nurse Practitioner/Palliative Care

Join the meeting

If you have been diagnosed with PSP or CBD in the past six months and would like to join the meeting, please email helpline@pspassociation.org.uk