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PSPA Newly Diagnosed Support Group

Our PSPA Support Groups offer amazing support to everyone affected by PSP & CBD however, these meetings regularly host people at different stages of their disease progression and for some newly diagnosed people this can be quite daunting.

Our Newly Diagnosed Support Group is aimed at people who have been diagnosed within the last six months . We know from feedback how important it is for people to meet others who are experiencing the same feelings and emotions following diagnosis and be able to talk through the support and information available to them. So if you feel ready to meet other people who have also just been diagnosed with PSP or CBD then this is the group for you. Some people take part with a family member, carer or friend.

The meetings are held as a block of six and at each meeting we are joined by a health or social care professional who will talk about their role in the care and management of PSP & CBD. You’ll be able to ask questions, share experiences and connect with people who are at a similair stage in their PSP or CBD journey.

Meetings will take place on the last Wednesday of each month and the next six month block will commence on 24 November at 11am.

2021/22

24 November – Dr Negin Holland, Neurology Registrar, Cambridge

26 January  – Voice Banking – SpeakUnique

23 February – Sheila Wight – Speech and Language Therapist, Newcastle Upon Tyne NHS Trust

30 March – Dr Boyd Ghosh, Consultant Neurologist, Southampton

27 April – Ciara Baker – Clinical Specialist Neurological Practitioner, Bournemouth

25 May –  Sarah Malik – Senior Information Nurse – Compassion in Dying

Dates for the next 6 month block

29 June – TBC

27 July – Danielle Eckersley – Advanced Specialist Ophthalmic Practitioner

31 August – Dr Tim Rittman, Consultant Neurologist, Addenbrooke’s Hospital

28 September – TBC

26 October – Sarah Malik – Senior Information Nurse – Compassion in Dying

30 November – Chloe Cripps, Speech and Language Therapist

Join the meeting

If you have been diagnosed with PSP or CBD in the last six months and would like to join the next block of meetings , please telephone the helpline 0300 0110 122 or email helpline@pspassociation.org.uk