Our Local Groups offer amazing support to everyone affected by PSP & CBD however, the group meetings regularly host people at different stages of their disease progression and for some newly diagnosed people this can be quite daunting.
Our Newly Diagnosed zoom meetings are aimed at people who have been diagnosed within the last six months . We know from feedback how important it is for people to meet others who are experiencing the same feelings and emotions following diagnosis and talk through the support and information available to them.
The meetings for newly diagnosed people are held as a block of six meetings, at each meeting we are joined by a health or social care professional who will talk about their role in the care and management of PSP & CBD. During the meeting there will be an opportunity to ask questions, if you would prefer to send your question to the Helpline ahead of the meeting, please email using the address below.
The next block of six meetings will take place on the last Wednesday of each month with the first meeting taking place on 26 May at 11am
26May – Anna Kent, Neurological Conditions Clinical Specialist Nurse
30 June – TBC
28 July – TBC
25 August – Victoria Bartlett, Deputy Director of Patient care- Rowcroft Hospice
29 September – Dr Tim Rittman, Neurologist at Addenbrookes Hospital
27 October – Coral Mannion, Parkinson’s Disease Nurse Specialist
Join the meeting
If you have been diagnosed with PSP or CBD in the past six months and would like to join the next block of meetings , please telephone the helpline 0300 0110 122 or email firstname.lastname@example.org