This year, Rare Disease Day is taking place on 28 February.
The themes of the awareness day include sharing personal stories about rare diseases, across the globe.
To support the international awareness day, PSPA aims to share 10 stories in 10 hours via our website, social media and podcast.
If you would like to help raise awareness of PSP & CBD on Rare Disease Day by sharing your experience, please email Helen at communications@pspassociation.org.uk
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PSPA is the only UK charity dedicated to creating a better future for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We work to ensure the 10,000 people living with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate. We rely entirely on voluntary donations. PSPA is a registered charity in England and Wales (1037087) and in Scotland (SC041199).
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