Volunteer Support Group Coordinators wanted! CommunicationsInformation & SupportVolunteering Volunteer Support Group Coordinators wanted! During 2023, PSPA would like to extend our support across the UK, so all families…Alex6th January 2023
Registration now open for the Research Information Day CommunicationsInformation & SupportResearch Registration now open for the Research Information Day We are pleased to confirm registration for the Research Information Day is now open! The…Alex12th December 2022
Christmas Opening Times CommunicationsInformation & Support Christmas Opening Times Our office and Helpline hours will change slightly over the Christmas period. To ensure you…Alex7th December 2022
Study looking into lived experiences of PSP Research Study looking into lived experiences of PSP This week the findings of a study looking into the lived experience of people living…PSPA Admin1st December 2022
Updated PSPA research leaflet now available Information & SupportResearch Updated PSPA research leaflet now available Our leaflet, presenting current understanding of PSP & CBD causes and reviewing current research has…PSPA Admin24th November 2022
Questions wanted for ‘Ask the Expert’ event Information & Support Questions wanted for ‘Ask the Expert’ event PSPA is producing an ‘Ask the Expert’ webinar supported by the multidisciplinary team (MDT) from…PSPA Admin15th November 2022
Big Band Concert for PSPA Blog Big Band Concert for PSPA PSPA supporter Marylyn Dodwell-Lees from St Neots and Phil Hammond from Bedford have organised the…PSPA Admin14th November 2022
Ed’s Lace Christmas Tree Challenge CommunicationsInformation & Support Ed’s Lace Christmas Tree Challenge The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…PSPA Admin10th November 2022
PSPA Matters hitting your doormats this November CommunicationsInformation & Support PSPA Matters hitting your doormats this November The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…PSPA Admin1st November 2022
Help cheer #TeamPSPA at the London Marathon 2023! Blog Help cheer #TeamPSPA at the London Marathon 2023! We are currently looking for volunteers to make some noise at next year’s TCS London…PSPA Admin18th October 2022
Could you place a PSPA collection tin? Blog Could you place a PSPA collection tin? Looking for a simple and effective way of raising funds and awareness for PSPA? Just…PSPA Admin18th October 2022
Save the date – Research Information Day 2023 Research Save the date – Research Information Day 2023 Following the success of our 2021 event, PSPA is excited to announce our second online…PSPA Admin3rd October 2022
“I’m running the London Marathon for PSPA because of the support we’ve received” CommunicationsFundraising “I’m running the London Marathon for PSPA because of the support we’ve received” A big cheer and a massive thank you to Dr Jules Cuthbert, one of our…PSPA Admin29th September 2022
PSPA Open Day, 28 September CommunicationsInformation & Support PSPA Open Day, 28 September On Wednesday 28 September, we will be pleased to welcome supporters wide and far to…PSPA Admin26th September 2022
PSPA Study Day for healthcare professionals Information & Support PSPA Study Day for healthcare professionals We are pleased to confirm the return of our well-attended Study Day for healthcare professionals.…PSPA Admin21st September 2022
Survey for people living with PSP & CBD CommunicationsInformation & SupportResearch Survey for people living with PSP & CBD At the beginning of August PSPA sent you a copy of the 2022 patient survey. …PSPA Admin7th September 2022
Why I’m running six London Marathons for mum BlogFundraising Why I’m running six London Marathons for mum Steve Watson is one of our team of 44 runners taking part in the London…PSPA Admin7th September 2022
A VIRTUAL GOLDEN TRIANGLE CHALLENGE FOR MUM Blog A VIRTUAL GOLDEN TRIANGLE CHALLENGE FOR MUM This spring Eram Osman challenged herself to completing a virtual challenge in memory of her…PSPA Admin1st September 2022
Family and friends fundraising for Shirley CommunicationsFundraising Family and friends fundraising for Shirley A group of family and friends in Kent are busy fundraising for PSPA in support…PSPA Admin11th August 2022
Amy’s Robin Hood Half Marathon Challenge for her grandad CommunicationsFundraising Amy’s Robin Hood Half Marathon Challenge for her grandad "My grandad was everything to me, the bond we had was so special. I have…PSPA Admin9th August 2022