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We employ around 20 staff in a range of roles in the regions and at our head office in Milton Keynes, Buckinghamshire.


Development Manager – Scotland based

We are looking for a Development Manager based in Scotland to raise awareness of PSP & CBD at the strategic level nationally. The post is permanent, but co-funded in the first year by the Scottish Government.

Following an extended period of campaigning by Keith Swankie – who is himself affected by PSP – the Scottish Government have recognised the need for greater awareness of PSP & CBD in Scotland, in particular within NHS Scotland. PSP & CBD are rare, terminal, neurological conditions, often initially misdiagnosed, affecting an estimated 560 people in Scotland. As a consequence, when one of our members attends a hospital, or calls the emergency services, quite often the medical staff will not have come across the condition before. Naturally, this can cause distress to the person affected by PSP or CBD and their carer, as well as to the health & social care professional involved.

The Development Manager will engage with NHS Scotland, other relevant medical authorities, rare disease groups, the Scottish Government Health and Social Care Directorates, and other Scottish based neuro-degenerative charities to drive awareness initiatives of PSP & CBD. In addition, the successful applicant will work with our PSP & CBD community in Scotland, supporting our existing local support groups, and helping to expand the network of support groups so PSPA can reach and support more people affected by the conditions.

It will require a great deal of drive and determination to fulfil this role, as well as exceptional planning and strategic skills.

You will need to be an excellent communicator and have the ability to build relationships easily and quickly, quite often with senior people. Whilst you will receive support and back-up from our Chief Executive and Director of Engagement, you will be working alone a lot the time. Whilst we can scope the fundamental requirements of the role, you will have the opportunity to define the detail of what you do.

This is a new role for PSPA, but we are not afraid to try new approaches and initiatives. There has been a lot of change at PSPA in the last 18 months. Namely, we have: relocated to new offices; launched our new branding; started development of a digital strategy; and, migrated our customer relationship data to Salesforce. This comes after a year where we reached more people affected by PSP & CBD, generated our highest ever level of income, and invested a record amount in research activity.

Access to a vehicle for work purposes and the willingness to travel around Scotland to promote PSPA and support local groups is essential.  Occasional weekend work will also be required.

See full job description for more details. Please apply to with your current CV and a covering letter to show us how your knowledge and skills match this role.

Closing date for applications is 14 June 2019

View Job Description

If you wish to ask any questions about any of these roles before applying, please contact us on 01327 322410