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We employ around 20 staff in a range of roles in the regions and at our head office in Milton Keynes, Buckinghamshire.


 

Research Coordinator

PSPA had a very successful 2018 that culminated in us hosting our first international research symposium, in collaboration with our American partners, CurePSP. We are looking to build on the global recognition we achieved at that event, and a vacancy has now arisen for a Research Coordinator. Primarily, the Research Coordinator will be focused on using their communication expertise and writing skills to support PSPA it its awareness raising campaigns by producing engaging stories about the impact of PSPA’s research activity. You will provide informative articles for social media, and interpret news and research items to handle press releases for our lay supporters, and internal audience. However, the role is much wider than just communications…

The Research Coordinator will also help to re-establish PSPA’s Research Advisory Board and be involved in managing our research programme. We have two eminent researchers into PSP & CBD on our Board of Trustees, who will provide you with support and contacts.

You will also have the opportunity to manage our relationships with pharmaceutical companies, and help set up an international alliance of PSP & CBD associations. A lot of variety!

Our success in 2018 was no accident – PSPA’s ethos is one of supporting new ideas, and backing our staff. We have recently relocated to Milton Keynes and launched our new brand. We are developing a digital strategy and have just migrated to Salesforce to help us implement it. This comes after a year where we reached more people affected by PSP & CBD, generated our highest ever level of income, and invested a record amount in research activity.

It’s a great opportunity to join an organisation that has undergone a top to bottom modernisation programme, and which values engagement with our supporters and partners strongly. The role of Research Coordinator is critical to our continuing success and reports directly to the CEO.

See full job description for more details. Please apply to recruitment@pspassociation.org.uk with your current CV and a covering letter to show us how your knowledge and skills match this role.

Closing date for applications is Friday 17 May 2019 

Interviews will be held at our office in central Milton Keynes.

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Development Manager – Scotland

We are looking for a Development Manager based in Scotland to raise awareness of PSP & CBD at the strategic level nationally. The post is initially a 12 months fixed term contract extendable up to five years, and is co-funded in the first year by the Scottish Government.

Following an extended period of campaigning by Keith Swankie – who is himself affected by PSP – the Scottish Government have recognised the need for greater awareness of PSP & CBD in Scotland, in particular within NHS Scotland. PSP & CBD are rare, terminal neurological conditions, often initially misdiagnosed, affecting an estimated 560 people in Scotland. As a consequence, when one of our members attends a hospital, or calls the emergency services, quite often the medical staff will not have come across the condition before. Naturally, this can cause distress to the person affected by PSP or CBD and their carer, as well as to the health and social care professional involved.

The Development Manager will engage with NHS Scotland, other relevant medical authorities, rare disease groups, the Scottish Government Health and Social Care Directorates, and other Scottish based neuro-degenerative charities to drive awareness initiatives of PSP & CBD. In addition, the successful applicant will work with our PSP & CBD community in Scotland, supporting our existing local support groups. They will also help expand the network of such support groups so PSPA can reach and support more people affected by these conditions.

It will require a great deal of drive and determination to fulfil this role, as well as exceptional planning and strategic skills.

You will need to be an excellent communicator and have the ability to build relationships easily and quickly, quite often with senior people.

You will receive support and back-up from our Chief Executive and Director of Engagement but will be working alone a lot the time. Whilst we can scope the fundamental requirements of the role, you will have the opportunity to define the detail of what you do.

This is a new role for PSPA, but we are not afraid to try new approaches and initiatives. There has been a lot of change at PSPA in the last 18 months. Namely, we have relocated to new offices, launched our new branding, started development of a digital strategy and migrated our customer relationship data to Salesforce. This comes after a year where we reached more people affected by PSP & CBD, generated our highest ever level of income, and invested a record amount in research activity.

Access to a vehicle for work purposes and the willingness to travel around Scotland to promote PSPA and support local groups is essential.  Occasional weekend work will also be required.

See full job description for more details. Please apply to recruitment@pspassociation.org.uk with your current CV and a covering letter to show us how your knowledge and skills match this role.

Closing date for applications is Friday 5 April 2019

View Job Description

If you wish to ask any questions about any of these roles before applying, please contact us on 01327 322410