We understand the path to receiving a diagnosis of Progressive Supranuclear Palsy (PSP) or Corticobasal Degeneration (CBD) can be long and confusing. As symptoms progress, we also know challenges can occur.
That’s why we’ve developed a range of information and support services to help you understand your diagnosis, manage your symptoms and allow you to live the best life possible with the conditions.
So whether you are newly diagnosed or have been living with PSP or CBD for a while, keep reading to learn more about the conditions and how support services such as our Helpline, Support Groups and Link Volunteers Service can help you.
You will also find lots of informative resources you can download to read and refer back to any time you need.
Understand more about PSP & CBD
As rare neurodegenerative conditions, PSP & CBD can affect people in very individual ways and pose significant challenges.
To help you understand more about PSP & CBD; the symptoms, how they may impact daily life and what support is available below.
SUPPORT FOR YOU
Utilising feedback from people we’ve supported, we’ve developed services to support you to understand your diagnosis, help you to live a fulfilling life with PSP or CBD, and plan ahead.
Keep reading to learn which services can help you today, and in the future.
SUPPORT SERVICES
Whether you need someone to talk to, want one-to-one support to aid your understanding or need a grant to help you life the best life possible, we are here.
Learn more about our Helpline, Link Volunteer Service, Support Grants and Voice Banking below.
SUPPORT NETWORKS
Connecting with others living with PSP & CBD can help you feel less alone and provide you with useful insights from learned experience.
Meet, share tips and information, provide vital peer support, and make friends via our range of Support Networks.
USEFUL RESOURCES
Our range of information sheets and detailed guides aim to help you as you come to terms with a new diagnosis and plan ahead.
From our Personal Guide, to information sheets to help you navigate changes and a quarterly magazine, we have your questions covered.
CONTACT US
If you would like to speak to someone about your diagnosis and the support available to you, please get in touch using the details below.
Alternatively, complete our Join Us form and a member of our team will give you a call.
Telephone: 0300 0110 122
