PSPA RESEARCH STRATEGY
The PSPA Research Strategy comprises three strategic elements identified from consultation with patients, carers, clinicians, researchers and organisations with a link to PSP & CBD. The implementation of the strategy is supported by our Research Committee.
Research is crucial for our purpose of creating a better future for everyone affected by Progressive Supranuclear Palsy and Corticobasal Degeneration. These rare and progressive neurological conditions take years to diagnose and currently have no cure.
Our new research strategy has been designed to support CBD & PSP research that drives better diagnosis, treatment and care, and offer hope of a better future to those impacted by the conditions.
PSPA RESEARCH STRATEGY CORE OBJECTIVES
HOW WILL WE ACHIEVE THIS
Involvement
We will grow our Public and Patient Involvement group to support more collaborations and co-working projects, ensuring the voices of people with lived experience of PSP & CBD are clearly reflected in the research that we fund.
Collaboration
We will collaborate with industry partners, academia, the NHS and other charities to amplify our voice and emphasise why more CBD & PSP research is critical.
Development
We will support early-career researchers and allied health professionals with grants, expertise and networking opportunities, and build the next generation of experts equipped to enhance the lives of people with PSP & CBD.
Inclusion
We will strive to make our research inclusive, ambitious, broad in scope, and relevant to the wide range of people affected by PSP & CBD, including those normally underrepresented in research.
Communication
We will continue to develop innovative and engaging ways to communicate research and maximise its impact.
RESEARCH STRATEGY 2026-2030 VIDEO
Our new research strategy has been designed to support CBD & PSP research that drives better diagnosis, treatment and care, and offer hope of a better future to those impacted by the conditions.
Hear from David Carter, Supporter and Volunteer; Professor Michele Hu, Understood Fund recipient; and Professor Karen Morrison, Chair of the Research Committee, about the need for research and how we plan to drive it forward.
PSPA RESEARCH NETWORK
Our PSP Research Network is central to our research activity. This UK-wide collaboration between leading PSP research centres is a major step towards the achievement of our strategic aims.
PSPA is a member of the Association of Medical Research Charities (AMRC). The AMRC represents medical research charities in the UK and ensures that the research funded by its members meets rigorous scientific standards. AMRC membership gives our donors and fundraisers confidence that we are only funding high-quality projects that will provide meaningful outcomes.
The AMRC has a position statement on animal research that all its members abide by. You can read more about this here.
We rely entirely on voluntary donations to drive forward the search for an effective treatment. Find out how you can support us.
You can learn more about the current CBD & PSP research projects we are funding here.
James Cusack, Chief Executive, PSPA
“An established network is helping to raise the profile of PSP & CBD research in the UK and set the scene for future investment.”
CONTACT US
If you are interested in participating in PSP or CBD research, want to collaborate with PSPA on a research project, or simply learn about neurodegenerative disease research specifically around Progressive Supranuclear Palsy and Corticobasal Degeneration, get in touch with our team at:
Tel: 01327 322418
