PSPA RESEARCH INVOLVEMENT MEMBERS (PRIM)
PSPA’s Research Involvement Members, or PRIM, was established in 2022.
PRIM is formed of a group of people all of whom are affected by PSP or CBD in someway.
They use their experience of PSP & CBD and interest in progressing research, to help PSPA create better patient centred studies. PRIM do this by feeding into PSPA regularly via online meetings, taking part in patient advocacy programmes developed by pharmaceutical companies, and shaping literature about research.
PRIM MEMBERS
Currently, there are 10 members of PRIM who work alongside our Research Coordinator.
You do not need a medical or scientific background to be part of PRIM. To speak about the role and what it involves, please contact the Research Coordinator (research@pspassociation.org.uk)
HOW TO JOIN PRIM
If you would like to join PRIM to help shape future research into PSP & CBD, get in touch!
Tel: 01327 322418
