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Information & Support

Welcome to our information & support page

Should people living with PSP or CBD wear…

From Friday 24 July, it became a legal requirement for…

PSP & CBD Awareness Week 2020

Our PSP & CBD Awareness Week has been rescheduled to…

Ask the Helpline – Live Q&A Session

On Wednesday 10 June, to help mark Carers Week, PSPA…

PSPA Funded Research Update

Since the lockdown began, many medical researchers who also usually…

Nominate PSPA for a £1000 donation

Help PSPA be in with a chance of receiving a…

Join the #TwoPointSixChallenge to support PSPA

On 26 April the nation is coming together for an…

Volunteer support during the coronavirus

In support of the NHS Volunteering initiative, PSPA volunteers will…

Message from the CEO

The developing Coronavirus pandemic is currently at the forefront of…

PSP & CBD and Coronavirus

We are aware that many of you will be concerned…

#JointheFight to help raise awareness of PSP &…

Could you #JointheFight against the misdiagnosis of PSP & CBD…

Initial findings from the PROSPECT Study

Research estimates that up to 10,000 people may be living…

New online interactive resource

We are thrilled to launch our new online interactive resource…

Exploring physical activity in people with rare neurological…

The PARC (Physical Activity for people with Rare Neurological Conditions)…

Georgie runs the 2019 London Marathon for PSPA

Georgie Irwin is running the London Marathon for PSPA in…

25 years of PSPA – interview with our…

“We were so upset that no one seemed to know…

The Neurological Alliance Patient Experience Survey

This questionnaire is about your care and treatment for your…

Improving our support to you – our vital…

Volunteers are the lifeblood of PSPA. It is directly because…

New post to support people in Scotland with…

The Scottish Government will provide £25,000 in funding to PSPA…

Awareness Week 15 – 21 May 2017

For people with PSP getting a correct diagnosis is challenging,…

Reorganisation of our Information & Support Services

You just need one number for support – our Helpline