We understand being diagnosed with PSP or CBD can be a bewildering experience. Although you might finally have answers to what is wrong, it will open up more questions about what life will be like.
To support you after your diagnosis and help you to plan for any changes that may come, we have established an online support group for newly diagnosed people.
HOW CAN THE NEWLY DIAGNOSED SUPPORT GROUP HELP?
Our Newly Diagnosed Support Group takes place via Zoom in six monthly blocks.
During these six hour-long sessions we will help you to take the first steps to making sense of your diagnosis. We will help explain the conditions, how symptoms may progress and empower you to live well with PSP & CBD.
Meetings are supported by a member of the PSPA Helpline. Guest speakers from different health professions will also be available to answer any questions you might have.
Newly Diagnosed Group Meetings will be helpful to you if:
- You have received a diagnosis within the last six months
- You don’t know what information and support is available to you
- You would like to hear from a range of health professionals supporting people with PSP & CBD
- You feel ready to meet other people who have also been recently diagnosed with PSP & CBD.
You will be able to ask questions, share experiences and connect with people who are at a similar stage in their PSP or CBD journey.
After attending the six monthly sessions, we will encourage you to join other PSPA Support Groups, in-person or online.
WHO CAN ATTEND THE NEWLY DIAGNOSED SUPPORT GROUP MEETINGS?
We know a diagnosis of PSP & CBD doesn’t just affect the person diagnosed, but the whole family too.
That’s why our Newly Diagnosed Support Group meetings welcome people diagnosed with PSP or CBD, and family members who help to support and care for that individual.
NEWLY DIAGNOSED SUPPORT GROUP 9
Group 9 is our current group of newly diagnosed people who are accessing support.
Below is a list of meeting dates along with any themes and speakers.
All meetings begin at 11am.
- Meeting 1: Â Â Â Â Â Wed, 28 May 25 – Speaker Riona Fumi, Research Coordinator from National Hospital in London
- Meeting 2: Â Â Â Â Â Wed, 25 Jun 25
- Meeting 3: Â Â Â Â Â Wed, 30 Jul 25
- Meeting 4: Â Â Â Â Â Wed, 27 Aug 25 – Speaker Chloe Cripps, Speech and Language Therapist
- Meeting 5: Â Â Â Â Â Wed, 24 Sep 25
- Meeting 6: Â Â Â Â Â Wed, 29 Oct 25
CONTACT US
If you would like to join the next block of newly diagnosed meeting please telephone the Helpline:
Telephone: 0300 0110 122
Email: [email protected]
