The PSPA Podcast was launched with support of Pavers in 2021 with the aim to inform and connect carers across the UK.
Following a review of the of the podcast in 2023, a focus group said they would like series two of the podcast to support the whole PSP & CBD community, sharing experiences from people living with the conditions, carers, clinicians, and researchers too.
Episodes will focus on sharing experiences, giving informal advice and raising awareness of PSP & CBD.
Tune into our podcast by downloading the Spotify Podcast App and searching for PSPA Podcast. Or listen by clicking the links below.
PSPA PODCAST SERIES THREE
THE BENFIT OF MOVEMENT
In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura highlights what you might expect from any physiotherapy appointments you are referred for. And how movement, big and small, can help people who are living with PSP & CBD maintain functions and wellbeing.
DEALING WITH DIAGNOSIS
In the first episode of series three of the PSPA Podcast, we speak to Anna from RareMinds. Anna helps us to unpick the complexities of coming to terms with a diagnosis of PSP or CBD, for both the person diagnosed, and their carer. As well as looking at the different emotions you may experience, Anna also provides some insight and tips to help you understand and process your feelings.
UNDERSTANDING SUPPORT AND CARE
In episode two of series three of the PSPA Podcast, we speak to Dr Vicky Marshall, Consultant Neurologist at Queen Elizabeth University Hospital in Glasgow. Dr Marshall helps to answer questions from the PSP & CBD community related to accessing support and care for a loved one living with PSP or CBD, ensuring that they remain at the centre of discussions and enough time is allocated to discuss everything you might want to ask.
PSPA PODCAST SERIES TWO
Living with CBD
Gilda shares her experience of being diagnosed with CBD and how her life has changed.
Diagnosing PSP & CBD
Dr Boyd Ghosh talks about the process of diagnosing PSP & CBD and why it can be challenging.
PSPA’s 30th Anniversary
PSPA CEO Rebecca Packwood talks about plans for marking the charity’s anniversary.
Volunteering for PSPA
Volunteer Sally Reynolds talks about her experience of helping people in her area.
PSP & CBD Awareness Week
PSPA CEO Rebecca Packwood talks to Mark Jackson about our 2024 awareness plans.
A Research Update
Dr Ed Jabbari shares an update about his research into biomarkers for PSP & CBD.
Living with PSP
Paul shares details of his first PSP symptoms, his diagnosis and adapting his interests.
Marking 30 YearsÂ
PSPA CEO Rebecca Packwood reflects on a year of 30th Anniversary activities.
PSPA PODCAST SERIES 1
An introduction
Beth Morgan Henderson shares her experience of PSP and why she wanted her work to support the podcast.
Getting support
Julia Tickridge outlines her husband’s PSP diagnosis and how she sought support for both herself and Laurie.
Delayed diagnosis
Denise Hunt and Nevin Sewak share their experiences of their mums receiving a delayed diagnosis.
Caring for a parent
Claire Wells talks about her mum’s CBD diagnosis and the care she provides at home and in a care setting.
Explaining PSP
Sue Wilsea provides insight into the difficulties of explaining what PSP is to friends and family.
Voice banking
Samanta and Chris Willis talk about their experience of voice banking using old family videos.
Home adaptations
OT Julie Cummins shares her experience of PSP and gives tips on what adaptations to consider.
Advance Care Planning
Ewan Phillips details the plans his family made to ensure they upheld his mum’s wishes after she died.
Taking on a challenge
Katy Butterill talks about the month-long walking challenge she took on in honour of her mum.
Support for carers
Carol Amirghiasvand and Caroline Woodcock chat about the different ways PSPA can support carers.
Relaunching Ed’s Lace
Scott Smith joins us to share details of how Ed’s Lace was created and how he feels about a relaunch.
Carers Week 2022
Carer Support Group Facilitator, Jacqui Ede, talks about looking after yourself whilst caring for someone living with PSP or CBD.
Support for young people
PSPA Volunteer Kathryn Embree shares her experience of her dad having PSP and support for young people.
THE PSPA HELPLINE
Helpline Manger Julia Brown details the support the Helpline can provide to families and healthcare professionals.
The PSPA Podcast was launched thanks to the generous support of the Pavers Foundation in memory of Mary Youll.
CONTACT US
If there is a topic you would like to see covered by our podcast or you would like to share your own experience, we’d love to hear from you.
Get in touch with our communications team at@
Email: [email protected]
Telephone: 01327 356135
Watch our education videos which aim to raise awareness and educate health and social care professionals about PSP & CBD and how best to manage symptoms.
Watch our education videos which aim to raise awareness and educate health and social care professionals about PSP & CBD and how best to manage symptoms.
