Life with PSP & CBD can throw up different challenges from time to time.
From fully understanding your diagnosis, to understanding what support is available to your in your area, or planning for any adaptations you might need for your home. It can be a lot to process and difficult to know where you can access help.
Our Link Volunteer Service aims to provide the support you need, as you come to terms with how your life could change, and face different changes and challenges along the way.
Support is provided on a one-to-one basis or for a family by our trained Link Volunteers.
How could a Link Volunteer help me?
Link Volunteers provide short-term support to people affected by PSP & CBD to improve well-being and help navigate difficult times. Those accessing the service will receive up to twelve weekly or fortnightly in-person visits or phone calls from a Link Volunteer.
Link Volunteers provide a listening ear to give you the opportunity to talk through your feelings. Volunteers also have access to all publications provided by PSPA and resources that enable them to signpost to other organisations and services.
Is the Link Volunteer Service right for me?
The service is available to you if you have received a recent diagnosis or are going through a time of crisis. It is also available to carers of people who are having a particularly challenging time and would benefit from some 1:1 support. Link Volunteers can also support people with the condition and their carers together, if requested.
CONTACT US
You can self-refer to receive support from our Link Volunteer Service by calling our Helpline:
Telephone: 0300 0110 122
Email: helpline@pspassociation.org.uk.
Referrals can also be made by health and social care professionals.
Please note that we have a limited number of volunteers in specific areas, but we are working to expand the service. If none are available in your area, the Helpline team will be happy to discuss alternative support options.
