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Our Trustees

Our Board of Trustees is responsible for overseeing the Chief Executive and Senior Management Team to ensure the charity is run well and remains solvent.


Trustees also ensure we comply with charity law and governance best practise.

The Board meets quarterly and trustees attend PSPA events throughout the year. They give all their time on a voluntary basis.

Simon Koe (Chair)

Simon is the eldest son of Sara Koe who was the inspiration behind PSPA being formed in 1995. He has been on the Board of Trustees for 17 years.

Sir Colin Blakemore FMedSci FRS

Sir Colin is a British neurobiologist who has studied vision, development of the brain and neurodegenerative disease.

Shauna Mackenzie

Shauna came to be involved with the charity through the personal experience of her mother having CBD.

Professor James Rowe

James is the Cambridge University Professor of Cognitive Neurology and Consultant Neurologist leading the Cambridge based East of England specialist NHS clinic for PSP and CBD.

Claire Perry OBE

Claire has an extensive career background in the NHS and joined the King’s Fund in 2011 as a Visiting Senior Fellow to support the programme of work on integrated care. She contributes to both policy and leadership development at the Fund.

Barbara Johnston

Barbara has recently joined the Board of Trustees and brings the experience of both health services and being a Trustee.