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Other Research Studies

The PSP and CBD research community in the UK is very active and there are always a number of studies underway around the country.

The following projects are looking for participants; the majority here are not funded by PSPA. If you are interested in taking part, please get in touch with the researchers using the contact details for each project. Please note that most research studies have a number of strict criteria for participation. For each project, the researchers will need to confirm your eligibility to participate once they have your details.

If you would like to register your interest in taking part in future research studies, please complete our online form. Researchers often need healthy participants (controls) for their projects, so you do not need to be living with PSP or CBD to register.

Improving diagnostic and care pathways in PSP & CBD (PSP & CBD; Scotland)

Location: Scotland

This study will look at routes to diagnosis and care pathways of people with PSP and CBD in Scotland to find out how these could be improved. The study will also involve carers and family members to find out more about the support that carers require.

Key requirements to participate:

• Diagnosis of PSP or CBD or a carer
• Living in Scotland


Dr Diane Swallow
01224 437121

OxQUIP – Oxford study in Quantification in Parkinsonism (PSP only; Oxford)

Location: John Radcliffe Hospital, Oxford (travel expenses will be reimbursed)

This study aims to develop new ways of measuring PSP symptoms as precisely as possible so that when new drugs are ready to test, their effectiveness can be accurately assessed. During the study you would be asked to perform some simple tasks while the researchers measure the movements of your eyes, hands and body. You would also be asked to do some tasks on a tablet computer. Testing sessions in Oxford would take around an hour and a half to two hours and take place once every three months over 2 years if possible.

Key requirements to participate:

• Diagnosis of PSP and able to consent


Dr Chrystalina Antoniades
01865 234728

Research into Progressive Supranuclear Palsy (PSP) and Corticobasal Syndrome (CBS) in Cambridge

Location: Cambridge; can be completed at home if necessary.

Professor James Rowe and his team in Cambridge have a major new research study on PSP and CBS. He aims to understand the causes, symptoms, and variability from person to person, and work towards better diagnostic tests and treatment. The research includes test of memory and thinking, blood tests, and brain scans. Some of the research can be done at home, and we can fit the research to suit your individual ability and wishes.

We are also looking for healthy volunteers to help in the research.

Key requirements to participate:

• Diagnosis of PSP or CBD (or healthy volunteer)
• Living in East Anglia or able to travel to Cambridge


Dr Alexander Murley

Dr Negin Holland


Memory and attention in PSP (PSP only; Stockton-on-Tees)

Location: Dept. Psychology, Wolfson Building, Durham University, Queens Campus, Stockton-on-Tees

The study examines how PSP affects short term memory and attention. We’re particularly interested in how well people with PSP can remember sequences of locations, and find objects in cluttered displays. We will also measure eye-movements. We use computers and a touchscreen for the tests, which take about 2 hours to complete (including time for breaks).

Key requirements to participate:

• Diagnosis of PSP and able to consent


Dr Dan Smith
0191 334 0436