Search

Helpline: phone0300 0110 122

Other Research Studies

The PSP and CBD research community in the UK is very active and there are always a number of studies underway around the country.


The following projects are looking for participants; the majority here are not funded by PSPA. If you are interested in taking part, please get in touch with the researchers using the contact details for each project. Please note that most research studies have a number of strict criteria for participation. For each project, the researchers will need to confirm your eligibility to participate once they have your details.

If you would like to register your interest in taking part in future research studies, please complete our online form. Researchers often need healthy participants (controls) for their projects, so you do not need to be living with PSP or CBD to register.


Improving diagnostic and care pathways in PSP & CBD (PSP & CBD; Scotland)

Location: Scotland

This study will look at routes to diagnosis and care pathways of people with PSP and CBD in Scotland to find out how these could be improved. The study will also involve carers and family members to find out more about the support that carers require.

Key requirements to participate:

• Diagnosis of PSP or CBD or a carer
• Living in Scotland

Contact:

Dr Diane Swallow
01224 437121


OxQUIP – Oxford study in Quantification in Parkinsonism (PSP only; Oxford)

Location: John Radcliffe Hospital, Oxford (travel expenses will be reimbursed)

This study aims to develop new ways of measuring PSP symptoms as precisely as possible so that when new drugs are ready to test, their effectiveness can be accurately assessed. During the study you would be asked to perform some simple tasks while the researchers measure the movements of your eyes, hands and body. You would also be asked to do some tasks on a tablet computer. Testing sessions in Oxford would take around an hour and a half to two hours and take place once every three months over 2 years if possible.

Key requirements to participate:

• Diagnosis of PSP and able to consent

Contact:

Dr Chrystalina Antoniades
01865 234728
chrystalina.antoniades@ndcn.ox.ac.uk


Memory and attention in PSP (PSP only; Stockton-on-Tees)

Location: Dept. Psychology, Wolfson Building, Durham University, Queens Campus, Stockton-on-Tees

The study examines how PSP affects short term memory and attention. We’re particularly interested in how well people with PSP can remember sequences of locations, and find objects in cluttered displays. We will also measure eye-movements. We use computers and a touchscreen for the tests, which take about 2 hours to complete (including time for breaks).

Key requirements to participate:

• Diagnosis of PSP and able to consent

Contact:

Dr Dan Smith
0191 334 0436
daniel.smith2@durham.ac.uk

Diagnosis and Prognosis in PSP and CBD (PSP & CBD Cambridge)

Location: Cambridge

This long standing study continues to provide a wealth of information on the effect of PSP, CBD and frontotemporal dementia on brain function and cognition, including increasing data on prognosis and survival. The study also investigates the mechanisms by which the diseases progress.

Key requirements to participate:

• Diagnosis of PSP or CBD, or of a related disorder
• Healthy participants are also needed

Contact:

Dr Alexander Murley
m2505@medschl.cam.ac.uk


Neuroimaging of inflammation in memory and other disorders – NIMROD (PSP & CBD Cambridge)

Location: Cambridge

This study is using brain scanning techniques to extend knowledge of how inflammation and the disease-associated proteins tau and amyloid contribute to the causes and symptoms of theconditions. The researchers ultimately aim to help develop new treatment strategies and improve early accurate diagnosis.

Key requirements to participate:

• Diagnosis of PSP or CBD, or of a related disorder
• Healthy participants are also needed

Contact:

Patricia Vazquez Rodriguez
01223 336950

pv283@medschl.cam.ac.uk


Pick’s disease and PSP: Prevalence and Incidence – PiPPIN (PSP & CBD; Cambridgeshire &Norfolk)

Location: Cambridge; can be completed at home if necessary.

This study aims to gather reliable epidemiological data on the symptoms and survival of those living with PSP, CBD and frontotemporal dementia, as well as establishing how many people are currently living with these conditions in Cambridgeshire and Norfolk. The researchers would also like to better understand the overlap between these disorders and develop markers from blood, scans and cognition tests that reflect the full spectrum of patients.

Key requirements to participate:

• Diagnosis of PSP or CBD
• Living in Cambridgeshire or Norfolk

Contact:

Dr Alexander Murley
m2505@medschl.cam.ac.uk