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Patient and Carer Voices in Research Network
Join our new network and help support patient centred research. We work closely with researchers across the UK who undertake studies into PSP & CBD. Studies include the assessment of potential treatments through clinical trials run by pharmaceutical companies, to patient and carer questionnaires, tissue and blood banking, scanning and tests of new technologies.
We recommend that you follow our website and social media pages where new opportunities will be posted.
Carla Bancroft, whose husband Bob lived with PSP
“Every small engagement with research programmes made Bob feel he was grasping back a little control from this debilitating condition”
As our new network develops we hope to host some patient focussed events and workshops – further details of these will be posted on this page in due course. In the meantime please complete this form to join our network.
Unfortunately, we are unable to accept registrations from people outside the UK but one of our international partners may be able to help.
You may withdraw your consent at any time: