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Patient and Carer Voices in Research Network

Join our new network and help support patient centred research. We work closely with researchers across the UK who undertake studies into PSP & CBD. Studies include the assessment of potential treatments through clinical trials run by pharmaceutical companies, to patient and carer questionnaires, tissue and blood banking, scanning and tests of new technologies.

We recommend that you follow our website and social media pages where new opportunities will be posted.

Carla Bancroft, whose husband Bob lived with PSP

“Every small engagement with research programmes made Bob feel he was grasping back a little control from this debilitating condition”

As our new network develops we hope to host some patient focussed events and workshops – further details of these will be posted on this page in due course. In the meantime please complete this form to join our network.

Unfortunately, we are unable to accept registrations from people outside the UK but one of our international partners may be able to help.


















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We greatly appreciate your support and would like to keep in contact with you about our news - including stories and information about our supporters, research projects, volunteering & fundraising activities and appeals.

PSPA will use your personal information only for the purposes for which you have given us consent. We will keep your data confidential and safe, and will never swap or sell it and you can always withdraw your consent at any time by emailing info@pspassociation.org.uk or calling 01327 322410. You can see our privacy statement at https://pspassociation.org.uk/home/privacy-policy which explains how we collect, store, manage and use your personal information.


You may withdraw your consent at any time:

Call: 01327 322410.
Email: info@pspassociation.org.uk

For further information on how data provided on this form will be used, please view our Privacy Policy.