- Information & Support
- Get Involved
- Patient and Carer Voices in Research
- Raise Awareness
- Join Us
- About us
- PSPA Shop
Join the Fight against PSP & CBD
To aid earlier, accurate diagnosis of PSP & CBD, we’re launching the year-long #JointheFight campaign.
New evidence from the PROSPECT study highlights 50% of people living with PSP & CBD are initially misdiagnosed with similar neurodegenerative conditions such as Parkinson’s.
We want to fight against the misdiagnosis of PSP & CBD to ensure everyone affected receives specialist care and support when they need it.
Help our voice be heard
Launching on Saturday, 29 February, Rare Disease Day, we want to Red Flag the symptoms of PSP & CBD to MP’s, GP’s, health and social care professionals and the general public.
We need your help to Red Flag the symptoms of PSP & CBD and ensure our collective voice is heard in Parliaments across the UK, and beyond.
Lobbying your local MP can have a huge impact on making them more aware of PSP & CBD, the symptoms and the impact on day to day life, as well as supporting PSPA’s work in the future.
The best way to ensure your request for help stands out is by writing a personal message to your MP.
Write to your MP
Whether you are planning to write a letter or send an email, these top tips will help you to create a lasting impression when contacting your local MP:
- Check who your local MP is https://members.parliament.uk/
- Keep your message brief
- Make it personal by explaining your connection to PSP & CBD
- Be clear about what you want them to do
- Include your postcode
- Follow it up
- Share any MP responses with us at firstname.lastname@example.org
If you are still unsure where to start, download our template letter.Template Letter