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Helpline: phone0300 0110 122

PSPA Support & COVID-19

As we enter another week of the UK lockdown we wanted to reach out to all our members and supporters to remind you PSPA is continuing its provision of support and guidance.


During the past few weeks, we have continued to provide support, information and company to people living with PSP & CBD, as well as their family members, through both incoming and outgoing helpline calls. We’ve also been using our newsletters and social media channels to regularly highlight our helpline hours, the rich array of resources available on our website and our new volunteering service, which provides companionship and help with tasks such as shopping and picking up prescriptions to those self-isolating.

We are committed to ensuring this essential support continues, no matter how long the lockdown needs to be enforced. However, the impact of the COVID-19 lockdown restrictions has unfortunately already severely reduced the charity’s income. Whilst we have built up some reserves, in order to preserve our resources to enable us to continue our vital support for years to come, last week we made the difficult decision to furlough a number of staff members, on a temporary basis. This will allow us to access the financial support provided by the government’s Employment Retention Scheme. This means, over the next six weeks our staff team will be halved and thus, enquiries may take longer to respond to.

We ask for your patience and understanding during this difficult time, whilst we continue to deliver the best support services we can to you, your family members, healthcare professionals, volunteers and our fundraisers. Essential services which have only been made possible by your ongoing generosity over the past 25 years.

We appreciate it is not just PSPA the pandemic is affecting, but we appeal for your continued support to help us develop and deliver our information and support services for those most in need.

If you would like to make a donation to PSPA, you can do so here or call 01327 322414.

To contact our helpline, you can email helpline@pspassociation.org.uk or call 0300 0110 122.

PSP & CBD and Coronavirus

We are aware that many of you will be concerned about the developing Coronavirus and how it might impact on you, your health and in particular, any care provision you or a loved one might receive.

Join the Fight against PSP & CBD

To aid earlier, accurate diagnosis of PSP & CBD, we’re launching the year-long #JointheFight campaign.

For Carers

You may not think of yourself as a carer as such, but simply as a caring partner, husband, wife, son, daughter or friend.