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You, Me & PSP

Cilla Dagnell had a passion for life and love. An energetic and flamboyant character, she filled her days with adventure and laughter, fun and friendship.


Sadly her life was to be cruelly cut short when she passed away from PSP in 2015.

But her memory lives on in the newly-published You, Me & PSP, an honest, open and often humorous account of Cilla’s fascinating and colourful world, both before and while living with PSP.

Cilla was a prolific diarist and blogger and many of the words in the book are her own. It was mostly written during Cilla’s lifetime and, when no longer able to speak, she gave her husband Steve’s words her approval with a ‘thumbs up’.

The book does not shy away from difficult topics, Cilla was adamant they should be included. Neither does it attempt to give advice. Instead it shares hints, tips and information drawn from personal experience.

Page by page, Cilla and Steve selflessly take us through the physical symptoms and emotional impact of PSP, so that we may learn from their experiences.

“Never in a million years could I ever imagined myself in the role of ‘carer’”. Steve shares his innermost feelings as he strives to balance his unfolding role of carer, with that of husband.

In his foreword to the book, our President Charles Guthrie, Baron Guthrie of Craigiebank writes: “Thanks to the devoted couple’s openness throughout the book, many families affected by PSP will no doubt find comfort in their reflections alongside practical information on issues such as communication, feeding and planning for the future.”

Steve is delighted to see the book in print.

“I was determined to put my all into this book for Cilla’s sake, I did not want her story to go unheard. I firmly believe it will help expand the knowledge and existence of PSP to the known and unknown,” he said.

It was Cilla’s wish that proceeds from book sales should be donated to PSPA. Copies cost £10.99 plus £2.60 p&p (UK only. Overseas postage costs advised on request). To order, please email YouMePSP@pspassociation.org.uk or call 01327 322410 to make a card payment.  Alternatively, send a cheque made payable to PSPA to PSPA, Margaret Powell House, 415a Midsummer Boulevard, Milton Keynes, Buckinghamshire, MK9 3BN.  Please include your postal address and contact telephone number.

 

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