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#JointheFight to help raise awareness of PSP & CBD

Could you #JointheFight against the misdiagnosis of PSP & CBD by raising awareness of the symptoms?


We are calling out for people to help ‘Red Flag’ the symptoms of PSP & CBD to aid earlier diagnosis and improve care pathways.

The #JointheFight campaign follows the release of new evidence from the PROSPECT study, which indicates approximately 50% of people living with PSP & CBD are initially misdiagnosed with similar neurodegenerative conditions such as Parkinson’s.

We want to fight against the misdiagnosis of PSP & CBD to ensure everyone affected receives specialist care and support when they need it most.

To do this, we are encouraging our supporters to #JointheFight by reaching out to their local MP, GP surgery or raising awareness on social media.

People are urged to get involved in the campaign by

  • Writing to their local MP
  • Sharing ‘Red Flag’ posters with their local GP
  • Adding a  #JointheFight frame to their Facebook profile picture
  • Donating

Carol Amirghiasand, PSPA Director of Engagement, said:

“The results of the PROSPECT study are extremely significant in terms of the number of people being misdiagnosed. We want to use these ground-breaking findings to promote earlier diagnosis and ensure people receive the specialist care and support they need.

“We hope as many people as possible will get involved and #JointheFight by connecting with their local MP, sharing information with their GP surgery or adding the Facebook frame onto their own profiles.”

More information and tools to assist people as they #JointheFight are available here 

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