‘Ask the experts’ webinars for healthcare professionals CommunicationsInformation & Support ‘Ask the experts’ webinars for healthcare professionals We are pleased to have developed a series of 'Ask the expert' webinars with members…PSPA Admin28th March 2023
Volunteer Support Group Coordinators wanted! CommunicationsInformation & SupportVolunteering Volunteer Support Group Coordinators wanted! During 2023, PSPA would like to extend our support across the UK, so all families…Geek Design Admin6th January 2023
Registration now open for the Research Information Day CommunicationsInformation & SupportResearch Registration now open for the Research Information Day We are pleased to confirm registration for the Research Information Day is now open! The…Geek Design Admin12th December 2022
Christmas Opening Times CommunicationsInformation & Support Christmas Opening Times Our office and Helpline hours will change slightly over the Christmas period. To ensure you…Geek Design Admin7th December 2022
Updated PSPA research leaflet now available Information & SupportResearch Updated PSPA research leaflet now available Our leaflet, presenting current understanding of PSP & CBD causes and reviewing current research has…PSPA Admin24th November 2022
Questions wanted for ‘Ask the Expert’ event Information & Support Questions wanted for ‘Ask the Expert’ event PSPA is producing an ‘Ask the Expert’ webinar supported by the multidisciplinary team (MDT) from…PSPA Admin15th November 2022
Ed’s Lace Christmas Tree Challenge CommunicationsInformation & Support Ed’s Lace Christmas Tree Challenge The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…PSPA Admin10th November 2022
PSPA Matters hitting your doormats this November CommunicationsInformation & Support PSPA Matters hitting your doormats this November The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…PSPA Admin1st November 2022
PSPA Open Day, 28 September CommunicationsInformation & Support PSPA Open Day, 28 September On Wednesday 28 September, we will be pleased to welcome supporters wide and far to…PSPA Admin26th September 2022
PSPA Study Day for healthcare professionals Information & Support PSPA Study Day for healthcare professionals We are pleased to confirm the return of our well-attended Study Day for healthcare professionals.…PSPA Admin21st September 2022
Survey for people living with PSP & CBD CommunicationsInformation & SupportResearch Survey for people living with PSP & CBD At the beginning of August PSPA sent you a copy of the 2022 patient survey. …PSPA Admin7th September 2022
Wear Ed’s Lace to raise awareness of PSP & CBD CommunicationsFundraisingInformation & Support Wear Ed’s Lace to raise awareness of PSP & CBD Wear Ed's Lace to raise awareness of PSP & CBD.PSPA Admin23rd May 2022
Share your story for Rare Disease Day 2022 CommunicationsFundraisingInformation & Support Share your story for Rare Disease Day 2022 This year, Rare Disease Day is taking place on 28 February. The themes of the…PSPA Admin7th February 2022
PSPA welcomes a new CEO CommunicationsInformation & Support PSPA welcomes a new CEO Everyone at PSPA is extremely pleased to be welcoming our new CEO, Rebecca Packwood, to…PSPA Admin1st November 2021
Make Some Noise for people living with PSP & CBD CommunicationsFundraisingInformation & Support Make Some Noise for people living with PSP & CBD We are pleased to confirm PSPA has been selected to be part of the 2021…PSPA Admin30th September 2021
PSPA Podcast launches with support from Pavers CommunicationsInformation & Support PSPA Podcast launches with support from Pavers PSPA has launched a podcast for carers thank to the kind support of The Pavers…PSPA Admin10th June 2021
Funding partnership with SpeakUnique Information & Support Funding partnership with SpeakUnique PSPA are excited to be offering funding for voice banking through a partnership with SpeakUnique.…PSPA Admin15th April 2021
PSPA welcomes a new Chair of Trustees CommunicationsInformation & Support PSPA welcomes a new Chair of Trustees PSPA is pleased to be welcoming a new Chair to lead its Board of Trustees.…PSPA Admin31st March 2021
Helping the 10,000 people living with PSP & CBD be heard CommunicationsInformation & Support Helping the 10,000 people living with PSP & CBD be heard This Rare Disease Day, 28 February, PSPA is launching a new campaign to help people…PSPA Admin28th February 2021
PSPA awarded funding for delivery against Scotland’s Neurological Care and Support Framework Information & Support PSPA awarded funding for delivery against Scotland’s Neurological Care and Support Framework PSPA is delighted to have successfully bid for a round 1 funded project for delivery…PSPA Admin16th October 2020