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Communications

Welcome to our communications page for useful updates

PSP & CBD and Coronavirus

We are aware that many of you will be concerned…

#JointheFight to help raise awareness of PSP &…

Could you #JointheFight against the misdiagnosis of PSP & CBD…

Initial findings from the PROSPECT Study

Research estimates that up to 10,000 people may be living…

PASSPORT Study Discontinued

At the end of last week pharmaceutical company Biogen announced…

New online interactive resource

We are thrilled to launch our new online interactive resource…

Christmas Bauble Appeal 2019

Dedicate a Bauble to someone special this Christmas. Your Christmas…

Exploring physical activity in people with rare neurological…

The PARC (Physical Activity for people with Rare Neurological Conditions)…

Check out our new Tea Party Pack!

A Tea Party or Bakesale is a great way to…

Georgie runs the 2019 London Marathon for PSPA

Georgie Irwin is running the London Marathon for PSPA in…

25 years of PSPA – interview with our…

“We were so upset that no one seemed to know…

Improving our support to you – our vital…

Volunteers are the lifeblood of PSPA. It is directly because…

New post to support people in Scotland with…

The Scottish Government will provide £25,000 in funding to PSPA…

25th Anniversary Raffle

25th Anniversary Raffle Winners will be announced on Saturday, 1st…

Update on Care Information

Your Personal Guide to PSP We know that many of…

Update of the Continuing Healthcare Alliance

Since the Continuing to Care report launch in November, over…

Continuing to Care?

PSPA are pleased to announce they are now part of…

Awareness Week 15 – 21 May 2017

For people with PSP getting a correct diagnosis is challenging,…