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Communications

Welcome to our communications page for useful updates

Latest guidance on COVID-19 and PSP & CBD

On 19 July COVID-19 restrictions and guidance around social distancing…

Study in dynamic networks in PSP

Earlier this week, findings from a study in dynamic networks…

Lindsey’s 24 hour walk from Weymouth to Exmouth

Lindsey Aldington from Exmouth is taking on a 24-hour walking…

PSPA Podcast launches with support from Pavers

PSPA has launched a podcast for carers thank to the…

Nominations for the 10,000 Voices Awards now open

The nomination period for the very first 10,000 Voices Awards…

Julie’s 10,000ft sky dive for PSPA

PSPA Supporter, Julie Morrish is gearing up for a 10,000ft…

10,000 Voices raffle winners confirmed

Thank you to everyone who has been busying buying and…

PSPA welcomes a new Chair of Trustees

PSPA is pleased to be welcoming a new Chair to…

Helping the 10,000 people living with PSP &…

This Rare Disease Day, 28 February, PSPA is launching a…

Take part in a study to improve Google…

A team of researchers is currently looking for people with…

Ed’s Three Peaks Challenge to raise awareness of…

Ed Warth is currently training to climb the Three Peaks…

Talbot Underwriting selects PSPA to be their 2021-22…

We are pleased to announce Talbot Underwriting has selected PSPA…

Merry Christmas

As we countdown the last few days before Christmas, everyone…

Office and Helpline Christmas Opening Hours

Monday 21 December – office and helpline 9am to 5pm…

New report to bring rare diseases ‘Out of…

Following nine months of consultation, the rare neurological disease report,…

Take part in The Great PSPA Cake Off

Join us this autumn as we launch our first ‘Bake…

Simon Koe steps down as PSPA Chair

Following a five year term as Chair of Trustees, Simon…

Online Summer Raffle Winners

Thank you to everyone who supported PSPA’s specialist information and…

My London Marathon experience: why, how and when.

In December 2012 I turned 40 and started considering what…

Should people living with PSP or CBD wear…

From Friday 24 July, it became a legal requirement for…