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Communications

Welcome to our communications page for useful updates

New report to bring rare diseases ‘Out of…

Following nine months of consultation, the rare neurological disease report,…

Take part in The Great PSPA Cake Off

Join us this autumn as we launch our first ‘Bake…

Simon Koe steps down as PSPA Chair

Following a five year term as Chair of Trustees, Simon…

Online Summer Raffle Winners

Thank you to everyone who supported PSPA’s specialist information and…

My London Marathon experience: why, how and when.

In December 2012 I turned 40 and started considering what…

Should people living with PSP or CBD wear…

From Friday 24 July, it became a legal requirement for…

Buy your Summer Raffle tickets today

Tickets for our 2020 online Summer Raffle are now available…

PSP & CBD Awareness Week 2020

Our PSP & CBD Awareness Week has been rescheduled to…

Could you help PSPA during the Coronavirus crisis?

We are launching our Coronavirus Emergency Appeal to help protect…

Ask the Helpline – Live Q&A Session

On Wednesday 10 June, to help mark Carers Week, PSPA…

PSPA Funded Research Update

Since the lockdown began, many medical researchers who also usually…

Nominate PSPA for a £1000 donation

Help PSPA be in with a chance of receiving a…

Join the #TwoPointSixChallenge to support PSPA

On 26 April the nation is coming together for an…

Volunteer support during the coronavirus

In support of the NHS Volunteering initiative, PSPA volunteers will…

Message from the CEO

The developing Coronavirus pandemic is currently at the forefront of…

PSP & CBD and Coronavirus

We are aware that many of you will be concerned…

#JointheFight to help raise awareness of PSP &…

Could you #JointheFight against the misdiagnosis of PSP & CBD…

Initial findings from the PROSPECT Study

Research estimates that up to 10,000 people may be living…

PASSPORT Study Discontinued

At the end of last week pharmaceutical company Biogen announced…

New online interactive resource

We are thrilled to launch our new online interactive resource…