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Lynne’s story

“I see the progress that is being made and I firmly believe that eventually, they will find a cure. I’d like, in some small way, for Lesley and I to be part of that effort, so will continue to make sure there is a bauble with her name on it every year.”

When Lynne Richards twin sister Lesley died of CBD in 2011, Lynne was determined to raise money for PSPA to help others affected. Every year Lynne donates to PSPA’s Christmas Bauble Appeal and shares how it has now become a Christmas tradition


Lynne’s said:

“PSPA is the top of our charity list. How could it not be after watching what my twin sister Lesley went through. You don’t realise how cruel the disease is until you see it with your own eyes.

“Lesley and I were very close. I loved being a twin, it meant I didn’t have to do anything on my own. I had someone by my side throughout all the big milestones, like starting and leaving school. Even when we both married and moved to different areas we were still close. I knew she was always there for me.


She said:

“The deterioration was rapid. Lesley went from walking around seven miles a day to being in a wheelchair unable to swallow or communicate to us. After Lesley died I suggested to my husband Bob that we attend one of the Local Group Meetings. Everyone was so kind and supportive. We soon made friends and have attended meetings ever since. Going through a devastating experience like this really shows you how kind people can be. Once they heard about my sister, friends in our village offered to hold a coffee morning in aid of PSPA. On the day there was torrential rain, but that didn’t stop people from turning up to show their support. In just two hours we raised £450.

“Following the coffee morning we held another fundraiser in our home. We hosted 70 people for a four-course buffet meal. During the evening I gave a little talk on PSP & CBD and we raised over £1,000.

“We charged £10 per ticket but so many people wanted to give more. Organising fundraising events like this really exposes you to the very best of human nature.

“Every year we donate to PSPAs Christmas Bauble Appeal. I think of Lesley often. Even now I catch myself thinking I’ll give Lesley a call. For me, donating to the Christmas Bauble Appeal helps to bring Lesley closer. It provides us with an opportunity to remember them, alongside knowing that our donation will help others. Christmas is a time for family. Lesley is always with us, but by creating a yearly tradition of putting her name on a bauble helps her to be part of every Christmas.

“I see the progress that is being made and I firmly believe that eventually, they will find a cure. I’d like, in some small way, for Lesley and I to be part of that effort, so will continue to make sure there is a bauble with her name on it every year.”


 

 

Margaret’s story

“Dedicating a Christmas Bauble is one way I can pay tribute to Tony and keep him a part of my Christmas”

Christmas Bauble Appeal 2019

“Dedicating a Christmas Bauble is one way I can pay tribute to Tony and keep him a part of my Christmas” – Margaret Humble