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Family and Friends Day

Our 2018 Family and Friends Day was held on Saturday 29 September at the De Vere Beaumont Estate in Old Windsor, where 80 delegates joined us for a day of information sharing, and a wonderful workshop hosted by the English National Ballet.

An informal opportunity for all those people affected by PSP and CBD.


Our Family and Friends Days provide an informal opportunity for people living with PSP and CBD, their families and those who care for them to come together to learn more about research and care, the work of PSPA and to meet others affected by both conditions.

Our 2018 Family and Friends Day was held on Saturday 29 September at the De Vere Beaumont Estate, in Old Windsor.

80 delegates joined us for a day of information sharing, and a wonderful workshop hosted by the English National Ballet.  Questions and answers from the day will be uploaded shortly.

Please find Dr Ruth Lambs presentation below.

Download Presentation

We are currently planning our 2019 Family & Friends Day and will be looking to hold these events in places we have not visited for some time.

More details to follow.

What people have had to say about previous Family and Friends Days:

“Thank you all for another super day. It is so good to meet other families with similar issues”

“Thank you – a good day – lots of information and the opportunity to chat”

Helpline and Information Service

“I spoke to you on several occasions and genuinely do not know how I would have coped at the time without you. You were always supportive, informative and helped steer me through a very difficult time for my husband and me.”