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Janice’s story

“Dedicating a bauble to John gives me the chance to remember all the special times we had as well as enabling me to give something back to the charity who supported us during our time of need.”

When Janice’s husband John was diagnosed with PSP in 2007, PSPA provided support to her and her family. Janice now dedicates a bauble to John each Christmas to honour his memory and give something back to PSPA.


Janice said:

“In the run up to Christmas, I often find myself thinking of John and the good times we shared. Married for 57 years, John and I were well matched in our love of social activities and entertaining.

“Each year, we enjoyed hosting an annual Christmas Trivial Pursuit tournament with friends. An evening full of food, chat, laughter and a bit of healthy competition, of course, men vs women. 


She continues:

“Our world got a lot smaller though, once John was diagnosed with PSP in 2007

“John’s symptoms began with what our GP called a gun shaped hand. Having been in a car accident not long before, we assumed it was an orthopaedic issue. However, John was referred to a Neurologist who spent two years running tests before confirming it was PSP.

“John’s symptoms progressed so quickly I wrote a log to keep track of all the changes. Before we knew it, John could no longer leave the house and as his carer I stayed nearby, 24/7. Despite this, we were supported well by
family, friends, carers, the NHS and PSPA.

“PSPA provided invaluable template letters and guidance to help me appeal when John’s Continuing Healthcare Funding suddenly stopped. Thanks to this help, the funding was quickly reinstated meaning John could continue to receive the care he needed, at home.

“It is because of the support we received I donate to PSPA’s Bauble Appeal each Christmas.

“Dedicating a bauble to John gives me the chance to remember all the special times we had as well as enabling me to give something back
to the charity who supported us during our time of need.”